Hello Kenny I saw your earlier posts a little while ago now and have just come across them again. I've also just seen the facebook page you've set up. I have JLI too - about 8-9 years now. Controlled it well with Plaquenil but that stopped working recently and i have pretty much permanent flare ups on my face - not very pleasant as you're no doubt aware. To be honest, the plaquenil never really suited me - made me feel weird, especially first couple weeks of a new dose. Nothing else seems to work but you mention Betnovate. How well does that treat it? I've tried steroid cream and for the most part, it doesnt really touch it. I read on-line about a product caused Dimethyl sulfoxide - DMSO anecdotal reports about the 99% pharmaceutical grade treating JLI successfully. Bit reluctant to try it because although it can be bought, i'm not sure it's licensed. Not suggesting you try it but have you heard anything of it yourself? Interested to know Regards D
i would not try DMSO, i tried it 2003, it will burn your face off trust me, the first time i tried it i literally screamed in agony. it also ages you quite rapidly. Betnovate works quite well, there is a higher dose you use for 7 days then use the lower dose. Steroid creams dont work for me, they only make the flare ups worse mate
Ok. Well thanks for that, won't try DMSO then. Had my doubts, including about the garlic aroma thing, but hadnt reckoned on agony and ageing too. I'll try bentovate and let you know how I get on. Be careful with plaquenil, it does help to control it but it can start to mess with your head if you stop then restart the doses. Smoking stops it working properly too, sooner or later. In fact i wonder sometimes whether there's a link between smoking and jli. Hopefully we'll both see the back of it soon. I'm in Manchester too btw. Good luck D
Hi, I suffered from this horrible, embarrassing, itchy complaint for about 7 years. I was first diagnosed with 'scrum pox' by an old GP as I had played rugby and given Zovirax which was agony and pointless. It was picked up eventually by my doctor who said it was treatable but not curable. I used a topical steroid cream sparingly and then Predisolone orally during very bad outbreaks...this stuff cleared it up generally within 2 - 3 days. It would clear up with the steroids and then return gradually after about 3 - 6 months. It could be totally coincidental however when I gave up smoking in 2002 it stopped, and fingers crossed to this day it hasn't returned.
Herpes in your whole body such as fever blisters, hsv, or roofing shingles you know what it is like to stay with the pain and discomfort that herpes delivers. I don't need to tell you how awesome it would be to find something that works so that you no longer need to fear about stress or outbreak,Dr god hands herbal medicine cure my herpes in two weeks of taking is genuine and natural herbal medicine it has no side effect, The reason I'm writing this is that I promised Dr god hands I will share his herbal work to the world to see Herpes is no more a big deal.also Dr god hands can as well cure the following diseases...HIV,Hsv 1/2,Hepatitis B,Breast Cancer, Cervical Cancer,Leukemia Cancer,Lung Cancer,Brain CANCER,Blood Cancer,Prostate CancerDiabetes, Men/Woman Infertility Scoliosis,Fibromyalgia,Lottery Spell,Copd,Shingles,Fibroid, Fibromyalgia Liver/Kidney Inflammatory, EpilepsyHpv,Weak Erection,Wart RemoverCold Sore, Coeliac disease,Alzheimer's diseaseArthritis,Asthma,Allergic Asthma. Here His Contact E-Mail: doctorgodhands@gmail.com Whatsapp Phone.+2349057214220.
6 comments:
that way we can all share all our treatments
Hello Kenny
I saw your earlier posts a little while ago now and have just come across them again. I've also just seen the facebook page you've set up.
I have JLI too - about 8-9 years now. Controlled it well with Plaquenil but that stopped working recently and i have pretty much permanent flare ups on my face - not very pleasant as you're no doubt aware.
To be honest, the plaquenil never really suited me - made me feel weird, especially first couple weeks of a new dose.
Nothing else seems to work but you mention Betnovate. How well does that treat it? I've tried steroid cream and for the most part, it doesnt really touch it.
I read on-line about a product caused Dimethyl sulfoxide - DMSO anecdotal reports about the 99% pharmaceutical grade treating JLI successfully. Bit reluctant to try it because although it can be bought, i'm not sure it's licensed. Not suggesting you try it but have you heard anything of it yourself?
Interested to know
Regards
D
i would not try DMSO, i tried it 2003, it will burn your face off trust me, the first time i tried it i literally screamed in agony. it also ages you quite rapidly. Betnovate works quite well, there is a higher dose you use for 7 days then use the lower dose. Steroid creams dont work for me, they only make the flare ups worse mate
Ok. Well thanks for that, won't try DMSO then. Had my doubts, including about the garlic aroma thing, but hadnt reckoned on agony and ageing too.
I'll try bentovate and let you know how I get on.
Be careful with plaquenil, it does help to control it but it
can start to mess with your head if you stop then restart the doses. Smoking stops it working properly too, sooner or later. In fact i wonder sometimes whether there's a link between smoking and jli.
Hopefully we'll both see the back of it soon.
I'm in Manchester too btw.
Good luck
D
Hi, I suffered from this horrible, embarrassing, itchy complaint for about 7 years. I was first diagnosed with 'scrum pox' by an old GP as I had played rugby and given Zovirax which was agony and pointless. It was picked up eventually by my doctor who said it was treatable but not curable. I used a topical steroid cream sparingly and then Predisolone orally during very bad outbreaks...this stuff cleared it up generally within 2 - 3 days. It would clear up with the steroids and then return gradually after about 3 - 6 months. It could be totally coincidental however when I gave up smoking in 2002 it stopped, and fingers crossed to this day it hasn't returned.
Herpes in your whole body such as fever blisters, hsv, or roofing shingles you know what it is like to stay with the pain and discomfort that herpes delivers. I don't need to tell you how awesome it would be to find something that works so that you no longer need to fear about stress or outbreak,Dr god hands herbal medicine cure my herpes in two weeks of taking is genuine and natural herbal medicine it has no side effect, The reason I'm writing this is that I promised Dr god hands I will share his herbal work to the world to see Herpes is no more a big deal.also Dr god hands can as well cure the following diseases...HIV,Hsv 1/2,Hepatitis B,Breast Cancer, Cervical Cancer,Leukemia Cancer,Lung Cancer,Brain CANCER,Blood Cancer,Prostate CancerDiabetes, Men/Woman Infertility
Scoliosis,Fibromyalgia,Lottery Spell,Copd,Shingles,Fibroid, Fibromyalgia Liver/Kidney Inflammatory, EpilepsyHpv,Weak Erection,Wart RemoverCold Sore, Coeliac disease,Alzheimer's diseaseArthritis,Asthma,Allergic Asthma. Here His Contact E-Mail: doctorgodhands@gmail.com
Whatsapp Phone.+2349057214220.
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